Shruti and Gore, the now-famous twins from Kanpur, will finally have some relief from pain and multiple fractures that they suffer every year due to a rare congenital bone disorder called Osteogenesis Imperfecta (OI) that is characterised by brittle bones prone to fracture.
The twin sisters, who look like five-year-olds (just two-and-a-half-foot-tall) but are actually 22-years-old, are now being treated at the Sanjay Gandhi Post-Graduate Institute of Medical Sciences (SGPGIMS) here and their condition has improved vastly.
“The improvement is visible since they earlier suffered over a dozen fractures every year. Even the slightest pressure on their bones would lead to a fracture and the sisters were not able to sit upright. Now in the past one year, their have suffered just one or two fractures and can even sit for long hours,” said Prof. Shubha Phadke of the department of medical genetics, SGPGIMS, who has been treating the twins.
Shruti and Gore, who come to SGPGIMS in their customised wheelchairs, are accomplished singers and painters, besides chatting nineteen to a dozen even with strangers.
They are the recipients of “Bal Shri”, the prestigious award in the field of constructive arts (special category). Their paintings were sent to Delhi and on the basis of the same they were selected for the prestigious award in 2007.
The two also participated in the preliminary round of a music reality show and even sang a song on phone for actor Salman Khan who was extremely impressed with their exuberance and will to live.
“We have recently come out with our own album ‘Ek Nai Subah’. You must listen to our songs and let us know what you think of it,” chirped Shruti as she waited for her father in the PGI.
Gore informed this correspondent that, “We have won many awards like ‘Surya Samman’ and hope to win many more. We will now concentrate on our painting too because now we can sit up”.